Lisa C. from Ohio
How long do you believe you have had Lyme/tick-borne illness?
I was infected by mosquitos while on vacation during Christmas week of 2009.
How long did it take you to get a diagnosis?
I was officially diagnosed when I received positive results from Igenex last year in 2016…so 7 years!
Did you see multiple doctors before you were diagnosed with Lyme? If so, what types?
22 doctors: family and internal medicine, uro-gynocologists, neurologists, chinese medicine, cardiologist…The functional medicine provider gave me with the most answers.
Were you diagnosed with anything else before Lyme? If so, what?
I was diagnosed with “the beginning stages of MS" just before I turned 28. I refused to believe it.
Anything else you would like to share about trying to find a diagnosis:
I was living in Canada when I first got sick. The wait times for appointments, tests, and ER visits were horrible. I believe that because so much time passed between each appointment, my doctors missed the obvious pattern of my symptoms. When I moved back to the US at the end of 2014, the doctors got on top of things right away. Even though we didn't have a diagnosis, they were able to start me on treatments and therapies that worked right away.
Bottom line: Keep detailed notes!
How long have you been treating Lyme for?
I’ve been treating (what we thought to be a multi-layered autoimmune-like issue) since January 2015. I have been officially treating Lyme since August 2016. I am thankful to say that everything I did prior to finding out about Lyme was targeted at the root of my issues: for example neuro-feedback and essential oil treatments were still hugely beneficial and also treated Lyme and its coinfections.
Do you have any coinfections? If so, which ones?
6! Bartonella and Babesia are the ones I show positive for, and the most active.
What types of treatments have you tried?
That is a long list! I have done chiropractic, NET, NAET, Chinese herbs, acupuncture, vestibular retraining, pelvic floor physical therapy, focused lymph and deep tissue massage, lots of essential oils, neuro-feedback, eye movement stabilization and light therapy, nutritional therapy, and a custom organ strengthening protocol with my LLND. All have been beneficial for me - some more than others. The Byron White protocol is up next. :-)
List up to 5 of your biggest (past or current) symptoms:
- Inability to tolerate motion, whether it is in a car or near a ceiling fan - it all drives me nuts!
- Insomnia, especially during a new moon phase
- Noise sensitivity
- All day - horrible nausea. Thankfully, that has passed!
What is the biggest way that Lyme has affected your life?
It took my 20s from me…what should have been the best years of my life. It strained my marriage, my friendships, forced me to cancel on trips and events…It wrecked my pregnancy and infected my son. It stained my outlook of the future. Out of habit, my first thought when presented with an opportunity is: "What if I get sick doing that?" It’s a daily struggle to keep myself strong in order to help my son heal as well.
What do you wish people knew about Lyme Disease?
IT CAN BE PASSED TO YOUR KIDS. Don’t take, "Oh that’s just a pregnancy thing…" as a solid answer. This is your child's life. Group B Strep, vaccines, anything you put into your body while pregnant - will have an effect on your child. If Lyme and coinfections are in you, your baby will carry them too. Whether or not it becomes active in them is the real question. These buggers cross ALL barriers - blood/brain, spinal cord, placenta. Don’t be deceived.
The exact health status of your partner and your health status at the moment of conception is what becomes your child's body. That is a sobering thought!
Any advice for someone newly diagnosed with Lyme?
Don’t give into the fear. Research, but only from quality places and people. Don’t go into the groups and message boards until you are stable. And do NOT be afraid to fire your doctor. In fact, get used to the fact that you will get very good at it. ;)
Fun fact time! What is your favorite thing to do when you’re not attending to your Lyme?
Read! Or dance, or laugh with my son. :)
I am a health coach specializing in Lyme Disease now, and I love helping others live their lives in spite of their diagnosis.
To find out more about Lisa’s journey, you may find her on Instagram as @abundantlifelisa. Her blog is on her website at www.abundantlifeandwellness.org.