Kia M. from Georgia
How long do you believe you have had Lyme/tick-borne illness?
10 years. I believe I may have contracted while living in Florida, but I'm not sure. I never saw a bite or rash. I did have ringing in the ears which was diagnosed as sinus infection and also gastritis for 3-4 days a few months after ears ringing. After the gastritis I became reactive to food and started having pain in my shoulders and upper arms daily. Now I believe all of this was related to Lyme Disease.
How long did it take you to get a diagnosis?
Did you see multiple doctors before you were diagnosed with Lyme? If so, what types?
Yes, 2 family doctors, 3 gastrointestinal doctors, 2 medical internist, 2 chiropractors, 3 holistic doctors, 2 herbalist, 2 integrative medicine MDs.
Were you diagnosed with anything else before Lyme? If so, what?
Irritable Bowel Syndrome, fibromyalgia, Small intestinal bacteria overgrowth, pelvic floor dysfunction, GERD, Gastritis, multiple parasites, H. Pylori.
Anything else you would like to share about trying to find a diagnosis:
I had to advocate for myself. I had a strong feeling I had Lyme disease and although it was scary I had to keep pushing until I received answers. I was first diagnosed by a naturopathic doctor and then I took the Western Blot blood test and it can back positive and also revealed that I had the disease for a long time.
How long have you been treating Lyme for?
Since November 2016.
Do you have any coinfections? If so, which ones?
Rocky Mountain Fever, Mycoplasma, and parasites.
What types of treatments have you tried?
Ozone Sauna therapy, IV nutrition, Low Dose Naltrexone, Silver, and other natural antimicrobials
List up to 5 of your biggest (past or current) symptoms:
1. Muscle, joint and nerve pain through body
2. Migraines and brain fog
3. Food intolerance can only eat 2-3 foods without reacting
4. Gastrointestinal issues
5. Back, hip and pelvic pain
What is the biggest way that Lyme has affected your life?
My ability to work full time. I am a yoga and Pilates instructor and the severe pain and fatigue has affected my ability to teach. My social life with kids and husband, too. I can only do minimal tasks without feeling exhausted and overwhelmed. My social life with other close family members and friends because it is hard for them to understand what I'm going through. Sometimes my passion and desire for life, as the pain can be debilitating and difficult to function daily task.
What do you wish people knew about Lyme Disease?
I wish people would treat this illness with the same compassion as they treat cancer patients. I wish doctors were more knowledgeable in Lyme disease diagnosing and treatment. I also wish insurance companies would provide more and better coverage for varies doctors, other healthcare professionals, and treatments such as acupuncture, physical therapy, massage therapy, chiropractic and natural medicine.
Any advice for someone newly diagnosed with Lyme?
1. Fight for your answers. We can't get better if we don't know what we are dealing with. For 10 years I felt like I was fighting a battle and had no Idea what that battle was because I was not getting better.
2. Also reach out and connect with other Lyme warriors for help, understanding and support. Sharing your story can help you as well as others. I wouldn't be here if it wasn't for my connection with other people who are going through the same as myself.
3. Advocate for your health. We know our bodies and if something doesn't feel right (like a medicine, supplement or treatment) listen to yourself and speak up.
Fun fact time! What is your favorite thing to do when you’re not attending to your Lyme?
Relaxing at home with my husband and kids and watching a favorite TV show. Listening to music. Creating, dancing and inspiring.
To find out more about Kia's journey:
On Instagram as @circleoflyme.
Also on Instagram and Facebook as @zlifestyle.
Contact at firstname.lastname@example.org.