Alex N. from Michigan (and Texas)
How long do you believe you have had Lyme/tick-borne illness?
At least 7 years, possibly more
How long did it take you to get a diagnosis?
Symptoms started when I was 17, I was officially diagnosed at 21.
Did you see multiple doctors before you were diagnosed with Lyme? If so, what types?
I saw a rheumatologist, a gastroenterologist, an allergist, and then a naturopathic doctor who diagnosed me with chronic infection.
Were you diagnosed with anything else before Lyme? If so, what?
Fibromyalgia, celiac disease, seasonal allergies, shoulder injury
How long have you been treating Lyme for?
2 years (2.5 technically)
Do you have any coinfections?
Yes, I have been treated for protozoa rheumatica, bartonella, and babesia, as well as mycoplasma pneumoniae. I also struggle with Candida
What types of treatments have you tried?
Antibiotics, some herbals, supplements
List up to 5 of your biggest (past or current) symptoms:
Pain, fatigue, headaches, nausea, candida
What is the biggest way that Lyme has affected your life?
It’s affected how I perform in school. I am still a very good student and work hard, but my brain takes longer to process. I am in pain and need a nap every day to function well. It has also made me conscious of how my body functions.
What is one thing you wish people knew about Lyme Disease?
I wish people knew it existed, and how devastating it can be. I don’t look sick, but I feel sick all the time.
Any advice for someone newly diagnosed with Lyme?
Watch Under Our Skin. Talk to other people with Lyme. Find a physician who will support you. Do what works for your body. Also Epsom salt baths/foot soaks are a gift.
Fun fact time! What is your favorite thing to do when you’re not attending to your Lyme?
I’m a full-time law student at the University of Michigan. So I’m constantly reading about the law, which I love.