Polly S. from Massachusetts
Updated: May 3
How long do you believe you have had Lyme?
My son and I were diagnosed in 2005.
How long did it take you to get a diagnosis?
Did you see multiple doctors before you were diagnosed with Lyme? If so, what types?
Yes – At first, most were Lyme-illiterate. Then I found a few doctors who were Lyme-literate, but totally underground. One doctor at Yale was being harassed because he was treating Lyme (with great success) without specific symptoms, like the appearance of bulls' eye rashes. another doctor worked under the radar, taking patients secretly. I always paid in cash - at least 700 dollars per visit for most of the really good doctors. I also used more holistic approaches when I was desperate. I listened to secret recorded "Lyme codes” via conference calls with other sick patients and also was given colloidal silver by a doctor who would come to my house in secret...It was a very scary time.
Anything else you would like to share about trying to find a diagnosis?
It was scary that both my son and I were sick. I am grateful to the doctors that treated us even though they were under fire for it.
Do you have any coinfections? What types of treatments did you try?
I don’t take anything anymore, but I was treated for Lyme and Babesia.
List up to 5 of your biggest (past or current) symptoms:
Dizziness, brain fog, numbness in my arms and legs, tremors, and twitches.
What is the biggest way that Lyme affected your life?
Self confidence and safety...I was afraid to talk to doctors and I had a fear of always being dismissed.
What is one thing you wish people knew about Lyme Disease?
Alternative treatments saved our lives. Don’t give up if you know you’re sick - Keep trying to find someone who will listen.
Any advice for someone newly diagnosed with Lyme?
Educate yourself and find support...It’s amazing how many resources there are now - It’s wonderful. If you know you’re sick, don’t give up trying to get help.
Fun fact time! What is your favorite thing to do in your free time?
I like to paint and have tea parties!