• Lyme Disease Stories

Kris M. from Colorado

Updated: May 3, 2020

How long do you believe you have had Lyme?

I had one doctor tell me he thought I had Lyme for 30 years. I became very ill 11.5 years ago, and had my hip replaced 14 years ago at age 41 for a diagnosis of "arthritis."

How long did it take you to get a diagnosis?

It took over 8 years, as I had a “negative” Lyme test in 2006.

Did you see multiple doctors before you were diagnosed with Lyme? If so, what types?

Yes, several rheumatologists, several internists, a naturopath, a chiropractor, and dermatologists (as I had bizarre skin and autoimmune diagnoses, too).

Anything else you would like to share about trying to find a diagnosis?

I had a Lyme test that was negative in 2005, as it did not meet CDC criteria. My test showed a past Babesia infection. This was done by a Fibromyalgia & Fatigue Center (private – not mainstream). Mainstream doctors that I see still do not “believe” in chronic Lyme Disease.

How long have you been treating Lyme for?

3 years.

Do you have any coinfections?

Yes - Babesia and Bartonella.

What types of treatments have you tried?

Mostly herbals and antibiotics, along with cold laser treatment, acupuncture, and nutrition.

List up to 5 of your biggest (past or current) symptoms:

Low grade fever, fatigue, malaise, horrible muscle pain.

What is the biggest way that Lyme has affected your life?

I lost a promising career, the end of childbearing years, a long-term boyfriend, my interest in many sports and I barely hung on to my home. I’ve lost that zest and joy to go out and enjoy the world!!!

What is one thing you wish people knew about Lyme Disease?

That it is debilitating.

Any advice for someone newly diagnosed with Lyme?

Find a Lyme-literate doctor.

Fun fact time! What is your favorite thing to do in your free time?

Golf or anything outside.

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