• Lyme Disease Stories

Jenn B. from Illinois

Updated: May 3, 2020

How long do you believe you have had Lyme?

Since early childhood or birth.

How long did it take you to get a diagnosis?

Over 40 years.

Did you see multiple doctors before you were diagnosed with Lyme? If so, what types?

Functional medicine specialists, a pulmonologist, neurologists, psychiatrists, endocrinologists, and even the Mayo Clinic.

Anything else you would like to share about trying to find a diagnosis?

I actually sought out a lyme-literate doctor after listening to a friend share about his experience with Lyme Disease. My husband noticed that I met all of the criteria for Lyme Disease symptoms. I was in complete denial until we met with the lyme-literate doctor.

How long have you been treating Lyme for?

1 ½ - 2 years.

Do you have any coinfections?

All of them. I tested positive for every test my Lyme doctor ran.

What types of treatments have you tried?

Antibiotics, low dose antigen therapy (LDA), high dose Vitamin C IVs, and Myers' Cocaktail IV’s. I will hopefully be starting IV Ozone therapy soon.

List up to 5 of your biggest (past or current) symptoms:

Pain, memory loss, energy, fatigue, weight gain, and vision issues.

What is the biggest way that Lyme has affected your life?

I can no longer grocery shop without using the wheelchair carts because I don’t have the strength or energy. I don’t have the strength to clean my own house anymore. I am unable to stand up long enough to cook dinner for my family. I have lost the ability to do so much. All of the toxins are stored in my fat cells - and I just can’t eliminate any weight, I keep gaining weight.

What is one thing you wish people knew about Lyme Disease?

A simple course of antibiotics is not going to “cure” Lyme disease.

Any advice for someone newly diagnosed with Lyme?

Set really healthy boundaries for yourself, surround yourself with people who are there for the long haul, and forgive yourself often. Reach out when you begin to lose hope for getting better.

Fun fact time! What is your favorite thing to do in your free time?

I love to paint pottery and sing! I love being able to help other people.

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