• Lyme Disease Stories

Jen M. from Canada

Updated: May 3, 2020

How long do you believe you have had Lyme?

10+ years.

How long did it take you to get a diagnosis?

9 years.

Did you see multiple doctors before you were diagnosed with Lyme? If so, what types?

7 medical doctors, 2 naturopathic doctors, 4 specialists, and 3 surgeons.

Anything else you would like to share about trying to find a diagnosis?

Finding a diagnosis was a nightmare. After doing my own research I asked two medical doctors and my naturopathic doctor to test me for Lyme. They all refused me because they said we don’t have Lyme Disease in our region.

How long have you been treating Lyme for?

1 year.

Do you have any coinfections?


What types of treatments have you tried?

Biophoton treatment, oral antibiotics, and herbs/supplements. IV antibiotics are next.

List up to 5 of your biggest (past or current) symptoms:

Insomnia, tremors, extreme fatigue, severe pain from head to toe, loss of movement in hands/arms/legs, vision loss.

What is the biggest way that Lyme has affected your life?

I am unable to work, I can no longer work out or exercise, I can no longer do things I once loved to do, I cannot have kids, and it has affected my friendships and relationships.

What is one thing you wish people knew about Lyme Disease?

I wish they knew how horrific and devastating the disease is. It's hard for them to realize this when they can't see our symptoms just by looking at us. I wish they also knew about the Lyme corruption when it comes to doctors, insurers, and the government - all denying that chronic Lyme Disease exists - and therefore refusing any coverage for treatment.

Any advice for someone newly diagnosed with Lyme?

Join a support network, do your research, and most of all, never stop fighting...because you will be fighting until the day you die.

Fun fact time! What is your favorite thing to do in your free time?

I enjoy walking, when I am able to!

To support Jen's Lyme recovery, please visit her GoFundMe page:

(On Instagram as: @jenmarie010).

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