Haley M. from Georgia
Updated: May 3
How long do you believe you have had Lyme?
Almost 2 and a half years.
How long did it take you to get a diagnosis?
Did you see multiple doctors before you were diagnosed with Lyme? If so, what types?
Yes! 3 cardiologists, 4 pulmonologists, 3 neurologists, 2 infectious disease, 3 rheumatologists, 2 hematologists/oncologist, 1 gastroenterologist, 2 orthopedists, 1 chiropractor, 2 psychologists, 8 emergency room hospitalists, 2 endocrinologists, 1 ENT, 3 homeopathic clinics, and 4 pain doctors.
Anything else you would like to share about trying to find a diagnosis?
No matter what 1 or 20 doctors tell you, if you know something is really wrong with your body, always listen to your instincts. You know more about your own body than any doctor out there, so don’t give up on a diagnosis until it feels right.
How long have you been treating Lyme for?
About 3-4 months.
Do you have any coinfections?
Yes! Babesia, Bartonella, Ehrlichia, Mycoplasma, and POTS.
What types of treatments have you tried?
Before the Lyme diagnosis, I had steroid/botox injections into my costal joints in the chest (to relieve pain), but when that didn’t work, I had a nerve ablation to all of the nerves leading to my chest (which only made my pain worse). I also tried tons of medications - too many to list. After the Lyme diagnosis, I went through treatment with the homeopathic medicine, Lyme-N. That did not help me - so I started on oral antibiotics, IV antibiotics, and IV magnesium and vitamin C. I also take about 20-30 supplements now.
List up to 5 of your biggest (past or current) symptoms:
Chest pain! Migraines/headaches, joint pain, dizziness/fainting, and fatigue.
What is the biggest way that Lyme has affected your life?
When I first started getting symptoms of Lyme and didn't know what it was, I was in my sophomore year of high school. I had to leave school for half of my sophomore year, my entire junior year, and half of my senior year. I tried to attend my freshman year of college, but my body could not handle it, and I had to withdraw, which will now set me back an entire year. I have been bedridden for almost this entire time and lost 95% of my friends, also.
What is one thing you wish people knew about Lyme Disease?
I wish people knew how serious and prevalent Lyme Disease is. Lyme can be just as serious and fatal as cancer or any other chronic disease. It is not always cured with 2 weeks of antibiotics, and chronic Lyme is 100% a real disease. It is a fast-growing epidemic and the public needs to know about it.
Any advice for someone newly diagnosed with Lyme?
Everything happens for a reason, so just learn to be patient and have peace in knowing that some day you will feel normal again. Your whole life may seem like it is being taken from you, and it actually might be, but it isn’t the end. You might be sick now, but you are not dead, so focus on fighting and staying alive.
Fun fact time! What is your favorite thing to do in your free time?
I love to fish, hike, kayak, and do basically anything outdoors! Once I’m better, I hope to try camping or hunting for the first time.