• Lyme Disease Stories

Corie M. from Illinois

Updated: May 3, 2020

How long do you believe you have had Lyme?

6 years.

How long did it take you to get a diagnosis?

18 months.

Did you see multiple doctors before you were diagnosed with Lyme?


Anything else you would like to share about trying to find a diagnosis?

I found copies of my labs from the hospital and saw that I had a positive Mycoplasma test. I did research on it, and since no doctor would order me antibiotics - I ordered them from over-seas for Mycoplasma, and noticed my headaches were going away. I found my wellness doctor and he said that it was Lyme Disease. He recommended that I saw a specialist after looking through my pile of labs!

How long have you been treating Lyme for?

6 years.

Do you have any coinfections? If so, which ones?

Bartonella, Epstein-Barr Virus, HHV-6, Mycoplama, and probably more.

What types of treatments have you tried?

Antibiotics and herbals.

List up to 5 of your biggest (past or current) symptoms:

Fatigue, neck pain, sore muscles, muscle atrophy, headaches, and sleep issues.

What is the biggest way that Lyme has affected your life?

I am like a mad scientist now and research everything...I know probably more than a doctor. Unfortunately, I can’t go out all the time like everyone else.

What is one thing you wish people knew about Lyme Disease?

I wish that my friends with autoimmune problems - who take all kinds of pain pills and anti-depressants - would listen to me. I wish that there would be more funding for scientists and Lyme training for doctors. I also wish that Lyme doctors did not have to go "under-cover" in order to help you. This should be reported about on TV everyday until someone gets it through their head that these changes are necessary.

Any advice for someone newly diagnosed with Lyme?

Yes - Take your antibiotics and rest as needed. Use lots of ice, and no heat. I recommend a clean diet and to drink lots of water...also - to spread the word around!

Fun fact time! What is your favorite thing to do in your free time?

Hanging with my kids - We still go to park, even though our whole family has it. Both kids have had the classic bull's-eye rash. Now we no longer go near long grass - We don’t even ride our bikes under pine trees, as ticks can fall off pine trees. I had to take my child out of school for a couple years and no one understood why - not the schools, not the father - only me. My son is now 12 - he got bit when he was 6. He is now attending school, but takes one day off a week to rest. My daughter got treated right away and she is well, but too much sugar can cause her to relapse. I don’t want to end up in hospital again, especially after her last relapse. She was only 8 and they thought I was crazy because she said it hurt to bend her neck. I knew right away and took her in and said, " I need her blood work." They did it, even though they thought I was some crazy mom and her WBC came back at almost 20,000. She got two shots of Rocephin and they sent her home and blamed it on a sinus infection. I believe that because I have it, I can take care of kids better than if I was not here. I don’t know what would happen to them, as their dad would have no clue.

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